If Caleb shows progress in July, the way he did in May, then he may not need to transfer from the NICU before coming home. He would spend the rest of his hospital stay where he is and transition to a home ventilator in the short run.
As those 2 things have been on our minds and we have thought about what he needs, his oxygen percentage baseline has slowly gotten higher. So where it seemed we were at a standstill, we see that we are sliding backwards. Continually needing more ventilator support. Normally there has been a problem that has contributed to his higher numbers like the UTI, pneumonia, CPAP trial, more fluid in his lungs, etc. However, we cant seem to pinpoint something that's causing his needs to continue to rise.
In our religion we fast (go without food or water for 2 meals or 24 hours) with prayer to draw closer to God and gain greater faith and understanding. To pray for the sick and afflicted. We ask our friends and family to join with us this Sunday to pray and/or fast for our sweet boy. To fast that our family will be given strength, guidance and peace as Caleb's path is made more clear. That Caleb will receive comfort, peace and love throughout his difficulties. We would be honored to have all of you join us and appreciate the love and prayers you have offered so willingly.
While Caleb's path is still unknown to us, we have faith and assurance that God is aware of him and our family. He has a plan for Caleb's life and for our family and we feel honored to be his parents.
With much love,
Leah
Love you and your sweet family--we'll be fasting for you Caleb!
ReplyDeleteLove you so so so much. All of you. We will be fasting with all of our hearts this Sunday. My heart and prayers are in Dallas every. single. day. and hour really.
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Ang
You don't know me. I am Emily in Utah. I commented some time ago to let you know i am praying for you. I will be fasting for your family this Sunday. I believe in miracles! Your faith is an amazing example to me.
ReplyDeleteI love you! Count me in too. XOXO.
ReplyDeleteI'm sorry that it's been such a rough month for Caleb and for you all. I'll be praying and fasting.
ReplyDeleteI just love that baby so much and I don't even know you!!! I can't go to sleep without my "daily dose of dimples!" Praying and fasting!!
ReplyDeleteMay Jesus be near. I will join you. Love your little Caleb. Linda, aka Cara's mom and Hayden's grandma :-)
ReplyDeleteI will be praying and fasting with you. Sweet Caleb. Your updates bring me a lot of happiness and joy. From one mom to another, my heart is always with you Leah.
ReplyDelete(Amanda's mom from Louisiana here)....Caleb and your family will be fasted for, from our family. Your names, will be whispered to God's ear. I've been keeping updated on you, out of compassion. None of us can know of all the difficult things that have transpired. There maybe some folks that have had parallel experiences, but no one is you or your family, or Caleb. So in that impossibility to know of what dark crevices & valleys you've had to travel through, as well as the trauma of it all, we think of you. My hope and prayer, is that healing will come to all over time. Even with a healing of 100% restored health to Caleb, your heart, mind, and soul must have taken a blow, and will take time to repair. My hope is for those that surround you, can understand this concept, and will receive detailed impressions of what you need. For those things, that have to be carried by your family, my greatest prayer is strength, clarity, and peace. Love from Louisiana...Lisa
ReplyDeleteWe will be fasting and praying for your entire family. Thinking of you, and sending prayers and love from Oklahoma. PS. Thank you for the birthday message! xoxo
ReplyDeleteA friend of a friend! Fasting and sending prayers from NY!
ReplyDeleteLeah, Zeb, and kiddos,
ReplyDeleteIf its the hospital I'm thinking it is, I'm very grateful! It's where Aurora was treated when she was so ill her first 3 years of life. Still follows up with all docs there. It's also where my little sister was treated when she was a preemie in 1988Y'all will all have amazing care there for both Caleb and yourselves! Activities and groups for you and kids both! A library for the patients and family as well as a medical library with people ready to help when you have questions. In room movies,games, internet access etc accessible from the tv. A brand new multimillion dollar renovation to add on to the hospital which includes a Child Life Zone, Build a Bear (only one of its kind - in hospital), cafeteria, etc. Their cardio and pulmonary teams rock! Don't hesitate to let me know if you need to know about the area. It's like a second home to me. I've even got the local elders numbers there if you or the baby needs blessings.
Don't forget y'all also qualify for a stay at the Ronald McDonald house there. Each room has a daybed that turns into a bed at the hospital but if y'all need a place for the whole family closer to the hospital to stay that's a great option! They provide meals, a room and other services for families in y'all's situation. I used to volunteer with groups that benefit the Ronald McDonald house.
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