Snug as a bug

When we visited you yesterday you slept the whole time. You were so comfortable and calm. I love seeing your legs tucked up under you and your arms tight against your side. You're just the sweetest thing ever. 

Granny and papa saw you on the way to the airport. They sure loved seeing you. 

Last night when I checked in on you you were sooooo darling. The camera was positioned so I could see your sweet face. 

I can't wait until I can shower those cheeks with kisses. 

The respiratory therapist is doing your breathing treatments every 8 hours during the day. They stopped the one at night so you can sleep more soundly. The doc weaned one of your meds completely that was for pulmonary hypertension, since the blood pressure in your lungs was getting higher. The pressure is in a more normal range now so we will do a repeat echo next week to see if it stays down. The doc is still weaning your steroids. When you had aspiration pneumonia and were at 100 percent oxygen they put you back on the full dose. You're getting about half that now and they'll continue to wean. You've been in the 60's on oxygen with the volume being controlled instead of the pressure. 

You seem much more yourself this past week. You're pretty content while you're awake and when you are awake you're more alert. That 9 days on CPAP was very difficult on you. It was hard to watch. I know that when you are able to have your surgeries it will be extremely difficult. Most parents whose child goes through the surgery ask themselves why they had the surgery done. But once recovery is over the nurses tell us most parents wonder why they didn't do it sooner. In the end it will be the best thing for you. 

We will all just keep on keepin on. 

Sure do love you, Caleb Luke. 

Xoxo

Mom