Your sissies sure love you, Caleb.
After your GI study the doctor came to talk to us. He said the study didn't indicate aspiration or even a severe reflux. Instead of taking that information and going forward with the surgery next week we got different information. The neonatologist received a call from the GI surgeon and he said that the pediatric anesthesiologist mentioned not wanting to do the surgery because your vent settings are too high. He doesn't think you would be able to survive the surgery. The neo was quite surprised and didn't expect this so we are trying to work our way through this. We were just trying to wrap our heads around the fact that the trach would happen. Now the neo is worried that if we wait too long you won't be able to get the surgery, that we will miss our window. This is a lot to take in. My emotions are all over the place. Just know that we love you, Caleb. That we are trying to find out what you need.
Sure do love you.
Xoxo
Mom
We love you so much and are pulling for you every inch of this journey. God bless you with all the decisions and details as you work this out. I love seeing you together.
ReplyDeleteMelts my Heart. <3
ReplyDeleteWe love you��
ReplyDeleteLeah, what a beautiful family you have!! I can't get over how grown up your girls are! I still think of them being their Waco ages ;) Caleb is so handsome and strong. Thank you for blogging so that everyone who loves you, no matter how far away they are, can see how your sweet Caleb is growing. Love from Vegas, Em
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