Care Conference

We are in the process of setting up a care conference to consult a long term plan. We will meet with a GI specialist, pulmonologist and neonatologist and discuss what they feel is best for you and why. Your oxygen got down to 52 last night but then the tube got pinched when you moved your head and you went to 70. It's really hard to oxygenate but you're fighting. Youve been sleeping very well which is such a good thing.

While I was at the hospital I pumped next to your crib. I had the nursing cover on so I couldn't see the bottles. When I was almost done I checked the bottles and saw this:

I noticed my milk supply decreasing so I've been pumping for longer each time and I guess I pumped too long too many times. Yikes.

After I talked to the lactation specialist I got to hold you. You were 78 percent oxygen before I held you and then you went to 69. It was so relaxing just holding you. We both loved it. 

While I was holding you I noticed you pull away and it almost felt like you were gagging. You were definitely uncomfortable. I think you have a lot of reflux, sweetheart. Hopefully we can help you out with that. There is a surgery called a gastrosemy where they put a tube in and it comes out of your stomach. You'd be fed through a hole out of your body. They also do a procedure where they close off the top of your stomach so that nothing can be refluxed and aspirated. So many things to think about. 

Daddy got to see you after work and hold you. 

 

Sure do love you. 

Xoxomom